hospitals

Tuesday Tiny Tale – Me and My Shadow

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This tale continues from last week’s…

Tuesday Tiny Tale – Operating Theatre

It’s bad enough still having your parents as your next of kin when you’re my age, but how will I explain my dreadful situation when they arrive at my hospital bed?

I can’t eat or move much yet and it would be lonely in this isolation room if it weren’t for the constant stream of medical experts coming to peer and probe. Beside me is the incubator containing my tiny identical twin, still attached by the faux umbilical cord that formed out of goodness knows which bits of my insides. Apparently he was well tangled up in my viscera, hence the complicated and dangerous surgery, which I may or may not survive.

At least I am not responsible for him now. My parents, his parents are his official guardians, good luck with that Bro. I was an only child, a surprise, an afterthought, not a good surprise as I overheard mother say to aunty and another time telling a friend they came to parenthood ‘too late in the day’.

Anyway, they need to come into the hospital for a medical, moral and legal discussion about what should happen to Little Bro. Oh no, here they are, what am I going to say, I thought my team would be with them.

‘Oh my God what happened, not that wretched motorbike of yours?’

‘No Mother, I have never had an accident and it’s a moped not a motorbike.’

‘That’s a relief, so what did happen?’

‘There is no easy way to say this. I had a parasitic conjoined twin inside me for years, well all of my life and now he’s in that incubator.’

I pressed the emergency button, my father had fainted when he looked in the Perspex case. Mother had rushed out of the room screaming, causing chaos in the corridor, no doubt staff and visitors alike wondering what was going on.  There was even more chaos in my room with the crash team thinking I was the emergency.  It must have been in all the confusion that a visitor popped his head round the door and took a few snaps on his phone. That’s how we ended up a social media sensation and headlines on the evening news.

Unfortunately they got the story completely wrong.

BABY USED AS LIVING DONOR TO CURE TERMINALLY ILL MILLIONAIRE

The only positive was that they did not have my name and they could not know Baby Bro’s name, because he had not been given one. That was up to my parents, but they wanted nothing to do with him, especially when it was broached to them at an urgent meeting with the hospital lawyers that the facts should be given to the public to stop the awful speculation that was ruining the hospital’s reputation.

The family court decided they would not be fit parents and it was recommended I should be Bro’s guardian as I was his next of kin.

Baby Bro was now three days old, or the same age as me, opinion was divided. We were still joined, but doctors were worried he was gaining strength and weight, while I was becoming weaker. As Bro could not read or write only I could sign the consent form for the uncertain medical procedure to separate us.

I forced myself to look at him. After all, there was a strong possibility he would not survive. I don’t much like babies anyway, though I always presumed if I had one of my own I might like it. Baby Bro did not look like a baby, he looked just like me only tiny. I was repelled. If he lived, no one knew what would happen, would he grow, did he have a mind? As I grappled with these thoughts he smiled at me. I felt sick, could he read my mind, our mind?

He lived. I was put in a recovery room by myself, a nurse reassured me I could go to the special care unit and see him soon.

Baby Bro was made a ward of court as I was considered not fit to care for him yet.  In fact no one was sure how his care should be handled, it was a complex case that must go to the high court. Various groups started gathering outside the hospital, none of them quite sure what they were protesting about.

I was soon fit to leave hospital. I had never felt so well physically, after all, for the first time in my life I was no longer supporting another body. I had been subject to a barrage of tests, my DNA samples given, now I wanted to get on with my life. I was smuggled out of the hospital and returned to my flat, not completely free, I was warned not to leave the local area and advised to keep a low profile, someone had leaked my name.

So here I am, walking down the street, the late afternoon sun behind me, feeling like a normal person. I hope Baby Bro is in good hands, the experts know what they are doing… well there’s nothing I can do until, until what I’m not sure.

Have you ever had that experience when the sun is low in the sky and you think someone is behind you, but it is just the long shadow of a person yards behind. A shadow caught up with me and was beside my shadow on the pavement, identical to my shadow. I turned to look. There was nobody beside me or behind me. I quickened my pace, the shadow kept level alongside my shadow.

Tuesday Tale – Strange Endings

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Tuesday Tiny Tale -Mortuary Mystery
Today’s story is the final part of strange events in Puddleminster-on-Sea and follows on from Mortuary Mystery. Lottie Lincoln has returned to the police station.

‘It was the day before yesterday, or was it the day before that? I know it wasn’t raining. Anyway, the point is, I did not know the man in the CCTV photos at all, only to say hello to, nodding acquaintances, no idea what his name was. I always walk down to the sea past the Queen Victoria Memorial Park, early and he always walks past me on his way home with his newspaper, at least I assume that is what he is doing. Well we did before all those body parts were found.’

Lottie looked across the table at the young CID chap sent to interview her. She obviously wasn’t interesting enough to warrant two officers, good cop, bad cop and far from interrogating her, he had not asked her a single question yet.

DC Dan Berk looked across at the woman who had turned up at the police station and wondered how to get a word in edgeways.

‘Sorry, what did you say your name was?’

‘I didn’t, Lottie Lincoln, the author? You probably don’t read my novels, I expect you prefer dark crime.’

‘Okay Lottie, can we start again at the beginning. What is your real name?’

‘That is my real name.’

‘’Okay, so Lottie, Mrs Lincoln, you go for a walk every morning and say hello to complete strangers.’

‘Yes, I thought that’s what people did at the seaside, relaxed way of life, everything jolly, well perhaps not if you’re always finding body parts. Anyway the point is, I am innocent and so is the man.’

‘If he is a complete stranger, how would you know if he was a murderer or not?’

‘I am a writer, I observe people, I have an instinct.’

‘Well thank you for coming forward to help us with our enquiries. I just need to ask you a few questions about yourself. How long have you lived in Puddleminster?’

‘A few weeks.’

‘Do you live alone?’

‘I was widowed.’

‘I see.’

‘Very recently.’

‘Oh sorry.’

‘Very suddenly.’

‘I am sorry for your loss, did you and your late husband have a connection with this area?’

‘None at all, I wanted to go somewhere quiet where I wasn’t known, a little place rather like the villages in my cosy novels.’

‘So if you could give me your current and previous address and a few other details. We will do a few checks, but it is unlikely we will need to see you again. Thank you for coming and I hope we haven’t put you to too much trouble, goodbye.’

‘Wait, wait, there’s something I have to confess, just in case I have been caught on CCTV again. I bumped into him just now, the man, when he was leaving the police station. So you think the body was kept in a fridge and he works at the mortuary, but that doesn’t make him guilty. Others work there, in fact it might not even be a murder, a theft of a corpse, he’s got that assistant that’s obsessed with forensics…’

Lottie did not like the frown on his face, perhaps she was talking too much. How long since she had had a good natter in her new life? She was beginning to realise what it must have been like during Covid for people living by themselves. Lottie and Callum had been self contained, they missed going out, but they were not lonely. Now she not only missed him, but her busy life and her friends; perhaps peaceful and quiet was not such a good idea… she realised the chap was talking to her.

‘Mrs Lincoln, this is out of order. We have not released any more information yet or talked to anybody else. I trust you won’t go on social media or start speculating in the local community.’

Late that night Doctor Geoff Good was back inside the police station for questioning and a detective inspector from head office had arrived, he frowned at the small team gathered in the tiny office.

‘To summarise so far, the body of John James Smith is missing from his drawer at the hospital mortuary. Doctor Geoff Good the pathologist claims to be astonished and cannot offer any explanation as to how a body could escape his well run mortuary. His new assistant has just gone on annual leave and we have no idea where, but he doesn’t appear to be at his flat in Puddleminster. John Smith died of natural causes, a post mortem was not planned and no DNA samples had been taken, as his large loving family knew who he was. He was awaiting collection by the undertaker tomorrow who would be preparing for a family viewing. A situation that could not be worse. We have no proof that the remains in the park are his, if they are what do we tell the family. If they are not his, where the hell is his body? Oh yes it could be worse, your team has failed to find a head.’

The mortuary is locked and off limits to all hospital staff. We have no option, but to have the whole hospital searched in case the body has been hidden there. I will be going to speak to management. Sergeant, you will visit the undertaker first thing in the morning and explain why they will not be collecting the body yet. Constable Berk, it is your unenviable task to visit the family of Mr Smith and inform them with the briefest details what has happened. I suggest you imply he is still within the hospital, but you have to also persuade them to provide DNA samples. At first light a team of officers and the forensic team will carry out a methodical search of the whole of Puddleminster. I’m sure you appreciate the need to keep all details out of the press and off social media, but that won’t be easy.

A week later Lottie sat glued to the local news as she did several times a day. She had not been near the sea, Puddleminster was overrun with police search teams. At the shops she tried to glean local gossip and there was plenty of that; satanic rites, multiple bodies unearthed everywhere and a serial killer on the loose. She wondered about poor Doctor Good. Every news bulletin a police officer of increasingly high rank would be urging the public not to speculate and assuring them there was no danger to the public. Then at last that evening there was news. A serious looking policewoman with lots of badges on her epaulettes, was standing outside the hospital.

‘We have today arrested a mortuary technician from this hospital and charged him with preventing the lawful and decent burial of a body.  I can confirm no other individuals were involved and our enquiries are now complete. The family of the deceased have asked for privacy at this time.’

Of course that was not the end. On breakfast television the next day Lottie watched as the son and daughters of John Smith were interviewed.

‘We want to know how this happened to our Dad.’

They had obviously waived the right to privacy and Lottie guessed poor Doctor Good would be in for more vigorous investigation by the media. Would Puddleminster-on-Sea ever be the quiet place she had hoped for? But she couldn’t help smugly thinking she had been the first to guess what had happened.

Tuesday Tiny Tale -Mortuary Mystery

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Tuesday Tiny Tale – Closed Circuit
This evening’s tiny tale follows on from last week when Geoff was arrested as a murder suspect.

Geoff Good was alone in the interview room at Puddleminster Police Station. It had been on the local news about body parts being found in Queen Victoria Memorial Park, that’s why he had joked that as a pathologist at the hospital he did post mortems on deceased patients and did not chop up bodies. He did not expect them to use that as evidence of guilt.

The two CID officers came back in with a cup of tea, he assumed they were going to apologise for wrongful arrest and give him a lift home.

‘Doctor Good, we have some important questions to ask you with regard to your work, now new evidence has come to light.’

What on earth could they mean, had they found mortuary instruments lying in the park, no they were all present and correct when he left work yesterday. Was the victim someone he knew? Unlikely they would have identified the body so soon, you couldn’t even tell by tattoos these days, everyone had them.

‘You must have spoken to the woman in the CCTV picture, I saw her coming into the police station.’

‘No one has come forward to help with our enquiries.’

‘We know the victim was already dead when he was dismembered,’ chipped in the smug DC chap ‘very dead.’

‘That’s a relief, I mean for the victim.’

‘Dead for a while, but not decomposed, our forensic team have established the corpse had been kept somewhere cold.’

Geoff remained silent, he did not like where this was leading, but surely they did not think he regularly murdered people and kept them at the mortuary? Every body arrived or left the mortuary properly identified and recorded.

They stared at him, he tried to look them in the eye and not appear nervous or guilty. A thought came to him which he tried to dismiss. His new assistant did not disguise his ambition to get involved in proper forensics, not the boring bodies they dealt with at the hospital. He watched all the CSI programmes Geoff’s wife loved, but being fascinated with murder did not make him a murderer. Besides, he could not have hidden a spare body, all the drawers were occupied at present.

‘Did you wish to call your solicitor Doctor Good?’

How did things get to this stage already. He did not have a solicitor, only the school boy who had dealt with his great uncle’s will, or the local chap who had done the conveyancing for their house twenty years ago, probably retired by now.

‘No, I do not need a solicitor.’

Suddenly the DS brightened up. ‘We will be getting a warrant to search the mortuary, accompanied by your good self. In the meantime you are free to leave now as a person of interest. You may go home, but do not go to work and make sure we can contact you at any time.’

Geoff walked down the road in a daze, years of clinical and logical thinking did not help him process what was happening. He almost bumped into her, the woman from the picture. She recoiled and he automatically put his hands in the air. They both started to speak at once.

‘Sorry, sorry, I’m not a murderer.’

‘Sorry, nor am I didn’t mean to react like that.’

‘I don’t even know your name.’

‘I’m on my way to the police station to explain, I chickened out the first time. This is a nightmare.’

‘I’m so sorry you got involved.’

‘No I’m sorry, Lottie, Lottie Lincoln the novelist.’

‘Erm, I don’t read novels, Geoff Good, pathologist.’

‘Goodness, how interesting, life is stranger than fiction for sure.’

They both automatically looked around for hidden CCTV cameras.

‘Are we allowed to talk to each other?’

‘We both have a reason for walking down this road, I’ll be quick and tell you my situation. They seem to think I could have murdered and hidden the body in the mortuary, because it had been kept somewhere very cold, ridiculous of course, but at least they can’t possibly think you were involved.’

‘Do you have assistants?’

‘They are not murderers either, though the new one’s totally obsessed with forensics and CSI dramas. Oh, do you write dark crime novels, they’re all women writers.’

‘Indeed not, life affirming stories, family dramas, but I can see a story in this situation.’ Her eyes lit up.  ‘Perhaps no murder was committed, your assistant wanted to see a bit of drama so borrowed a body, chopped it up and created a fake crime scene. He would not be suspected, no blood soaked clothing and all that. Anyway, I had better get to the police station, good luck.’

The mortuary was empty of live persons when Geoff was escorted in by a team of plain clothed and uniformed officers. The person they had to show the warrant to was Geoff himself. It seemed the rest of the hospital was unaware of the mortuary drama. Had anyone even noticed Geoff’s absence? There obviously had been no deaths at the hospital in the past twenty four hours and he recalled the new assistant was starting some annual leave.

 No bodies on the slabs, pity, Geoff would have enjoyed making them feel queasy. He showed them all the computer and written records, then opened each labelled drawer one by one, assuring them it was a full house this week.

‘Everyone sleeping peacefully’ he joked nervously as they reached the last drawer.

The last drawer was empty, the name still on the front of the drawer, John James Smith.

The West Wing

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I usually get lost inside hospitals, but this week I got lost trying to get into a hospital.

I originally opted to have my cancer treatment at Poole hospital because my two local bus companies, three bus choices, all stopped at the main entrance. Since the sudden demise of Yellow Buses ( that’s another story for a bus blog ) my one local frequent bus service stops there. I was additionally relieved to have avoided Royal Bournemouth Hospital when the building work began…

Our three local hospitals now come under University Hospitals Dorset NHS Foundation Trust. Whether this rebranding prompted the building frenzy and swapping round of departments between hospitals or followed the new ideas who can guess. Most patients just want to know which hospital they are supposed to be going to and which door they have to go in.

The original two storey unimposing building was white with blue roofs and recent improvements made it easy to get from the ‘bus hub’ to the main entrance. The main entrance led to a light atrium where the stairs, a café, toilets, information desk, buggy rides, chemist and free taxi phone could all be found. If you stuck to the main corridor that led the length of the hospital, all was well. Of course if you left the main corridor you could easily get lost, you know the scenario…

‘When you come out of the Ladies I’ll be sitting here…’

‘Okay.’

‘Oh dear, I can’t see any seats, let alone a waiting husband…’

I once went out the wrong exit and ended up in the Toby Carvery car park instead of at the bus stops.

The main entrance has now disappeared completely in the building works.

Caner treatment and ongoing medication can lead to other problems, so a recent hospital appointment led to me going off in several directions. Already existing joint problems can be made worse, especially hands for some reason, with perhaps residual nerve damage. At least having bunches of bananas for hands doesn’t stop me writing. The nurse suggested visiting my GP about steroid injections, but he suggested an Xray first.

It has been a long time since I had a face to face with my GP. The wonders of modern technology; he sent my prescription for Ibuprofen gel straight to the chemist and pinged the phone number for X-ray department to my phone. When I rang up I had a choice of Christchurch or Bournemouth; Christchurch not easily accessible by bus, I can at least walk to Bournemouth. The walk is probably an hour, ‘cross country’ past my sports’ centre and then eight lanes of traffic to cross. Not a hike to be taken if the weather is bad or on a very hot sweaty day if you have to strip off for an examination, but a hand X-ray would be fine.

There was a map with the hospital letter and on the phone the receptionist had given me directions from the bus hub… but the reality didn’t make sense. If I had just been told not to go near the hospital, but ‘stay on the road and walk for miles until you find a hole in the hedge’ it would have made sense. I hoped for a bus to arrive and disgorge staff or confident patients I could follow, but the only humans around were waiting for a bus. A board showing departments revealed I needed The West Wing. There was a gate in a fence that said To the West Wing. I opened it, but another sign said No Access to Pedestrians. There did not seem to be any way to get near the hospital. I found signs that pointed to the West Wing and back out of the hospital …and back home? Eventually I realised there were signs at intervals along the hedge and at last a gap… I finally found my way between hoardings and confused motorists to the entrance at the far end of the hospital. Then I walked that long corridor almost back to the main entrance where the X-ray department lies.

GETTING INTO THE HOSPITAL WAS NOT GOING TO BE EASY

Luckily I had planned to arrive early and relax at the coffee shop, no coffee but at least I was in time for my appointment and I was seen straight away. A cheerful young woman took me down the usual maze of corridors, confidently opened one of those doors with skull and crossbones warning of radiation… and quickly backed out saying ‘whoops, sorry’. Obviously that room was occupied and she then found an empty one. It had occurred to me I might have to take my eternity ring off… I never take it off and it won’t come off…

‘Can you just take your ring off.’

‘Well I could run it under this cold tap.’

‘When did you last take it off?’

 ‘Probably over twenty years ago when I had my carpal tunnel done.’

‘Oh dear, I’ll ask my colleague… try using the sanitiser to make it slippery.’

That didn’t work, more consultation, then she came back and said she would just write in the notes about the ring. I would imagine that on an Xray it’s pretty obvious if the skeleton is wearing a ring… all went well after that. For some reason I had imagined putting my hand between two photographic plates, like a sandwich maker, but the rays came from above.

‘Can you find your way out?’

‘Yes, er maybe…’

‘Just follow the red dots on the floor.’

What a simple but effective idea. When I looked at my watch I had spent a very short time actually in X-ray.

In The Purple Zone

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Far from people not talking about cancer, I have found people are happy to talk about it if they know you have joined the club.

Someone I don’t know very well asked me to stay behind after a club Zoom meeting, personal not club business. I was puzzled and everyone else felt obliged to leave. I have noticed at paid for Zoom meetings, not the free sort where you get timed out after forty minutes, there are people who just disappear, others who wave goodbye the moment it officially ends and then there are  ‘only the sad and lonely’ left, reluctant to leave, keen to squeeze out a last bit of conversation or gossip about those who have already left…

Anyway, it turned out her husband had been diagnosed with prostate caner and was due to have radiotherapy. The fact that he was having it in a totally different place, body and hospital, did not put her off asking about my experiences.

In the middle of our busy local little Sainsbury on a Saturday morning I bumped into one of my neighbours who had an update. It was only falling off his bike and breaking his pelvis, that resulted in hospital blood tests revealing a rare blood cancer. We had a long chat about chemotherapy between the chocolate biscuits and the food bank.

Apart from the daily tiny anastrozole tablet and the twice daily huge adcal tablets, fortunately chewable, I have to have six infusions at six monthly intervals of Zoledronic acid. A week before is the blood test and booking that is wonderfully efficient at my hospital. Phone up oncology outpatients blood test line. They answer straight away and book you an appointment with no fuss.

The same nurse does blood tests all day long and soon calls you in. I feel like I know her and assume she knows why I’m there…

‘Have you got a blood form.’

’ No, I thought it was all on the computer.’

‘Who’s your consultant?’

My mind goes completely blank.

‘What are your ailments?’

‘Ailments? I haven’t got any ailments.’

‘Where was your cancer?’

‘Oh.. that..  breast.’

She narrowed the choice of consultant down to two and I recognised the name. A quick phone call and she knew what was being tested. We lay people think ‘a blood test’ will miraculously reveal all possible medical problems and presume there are at most three different kinds of tests, because they usually take three phials of blood.

The following week I headed confidently to Yellow Zone A, where I had the previous two infusions, only to find the waiting room in darkness and the desk deserted. There was a note pinned to the window. TIU unit moved to Purple Zone Level Two Cardiology Department. I don’t know what TIU actually stands for or why it would be in cardiology. Back down the corridor, back past Costa coffee, WH Smith and the toilets, down another corridor, up two flights of stairs. There were signs along the way, but once you leave stairwells and main corridors you are confronted with a series of swinging double doors and are not sure how far to go without ending up in an operating theatre or resuscitation room. I found a waiting area that said ‘wait here till called’, but how would they know I was here and what I was here for? I pushed some more doors and found a large room with an island in the middle and a person.

I was in the right place and had a nice young male nurse, who unfortunately couldn’t get the needle in. That always happens and I feel guilty for putting them under stress, you can’t go away and leave them in peace to concentrate. If you have had all your lymph nodes taken out, you are not allowed to use that arm ever again for anything, needles, even blood pressure band. So I only have one arm for them to use and my hand is the only part they can get into. Eventually he had to ask one of the other nurses who took a few tries. I wonder if it’s universal among the medical profession that patients are always told we will just ‘feel a little prick’ whatever is going in or coming out of our veins. I asked her if they are ever defeated and she said ‘No, well hardly ever…’ I suggested a scenario where the desperate nurse can’t find anywhere to put the needle except… ‘I’m just going to pop the needle into your jugular, just a tiny prick…’

Busy Buses

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When I was lying on the couch having biopsies taken, the doctor said ‘Do you want to be treated at Bournemouth or Poole hospital?’ My immediate response was Poole, to her surprise. I explained that though I lived in Bournemouth and the hospital is nearer as the crow flies, my local buses both stop right outside Poole hospital, while Bournemouth hospital involves two buses, waiting and stress or perhaps one that only goes once an hour. After this discussion on buses it dawned on me she must have been certain, with all the tests I was having that morning at the Dorset Breast Screening Unit ( at Poole hospital ) , that I did have breast cancer.

I didn’t actually come back on the bus after my operation, but there were numerous routine visits and breast cancer patients are under the hospital for five years, so my decision was wise. Perhaps I should add that this bus journey does take an hour, which would horrify car drivers, but you can relax and catch up with blogs on your phone or people/passenger  watch/eavesdrop. The hospital is also a short walk from the main town with shops? – well modern shopping is for another blog – museum, eateries and Poole Harbour, so if you have only been to the hospital for a quick blood test you can at least make an outing out of it.

I have been using buses since before I was born, everywhere I have lived, except for an Australian country town; so I have earned my bus pass. If you don’t drive, walking, cycling, buses and trains are essential and we non drivers are good for the environment, not that anyone thanks us. But I totally understand that lots of people have no reliable public transport or just think we are insane. The typical new bus passenger gets on board explaining to everyone that he doesn’t normally go on buses, but his car is at the garage getting fixed. He then looks round for an empty seat or the least weird looking person to sit next to. If, when you go on a bus for the first time, you have waited a long time at the bus stop, the driver is rude, there are some very odd people on board plus the local drunk, the bus is packed with noisy school children and you are squashed standing in the aisle I can understand that you would vow never to go on a bus again.

But part of the fun of buses is you can never be sure what will happen! Sometimes something worse happens, such as hearing that your local bus company has suddenly gone into liquidation… That happened to our yellow buses, just as they were celebrating their 120th birthday. Luckily for me we have another bus company, suitably called More Buses, already running my favourite blue bus, M2, going frequently back and forth between Southbourne and Poole bus station with heating, on board Wi Fi, phone chargers and electronic boards and speaker messages telling you which bus stop is coming up. They stepped into the breach within days ( far more efficiently than governments run countries ) offering jobs to yellow bus drivers and bringing in More buses from all over the place. This has made local trips interesting as buses of all colours and ages have turned up, so you have to be very careful to check the numbers. Don’t get on the green bus covered in pictures of trees and ponies and highlighting the delights of the New Forest and expect to go to this fantastic National Park if it says 1a on the front. There have also been drivers who have to ask the passengers which way they are supposed to be going.

Hey Ho, all part of the fun of buses and then there are the passengers, can you even be a writer if you don’t take buses? Hearing people’s life stories, missing your stop because you have got so involved in the phone conversation going on behind you. One early evening I got on the bus at Poole and a chap at the front had a homemade guitar, literally made of bits of wood nailed together and string tied on. It did actually make notes and he was telling everyone about it, in fact he talked non stop till he got off in Bournemouth, at times like these I love buses.

Do you go by bus? If so, have you had any strange trips?

Tuesday Tale – Questioning

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Emelda Forsyte had little experience of hospitals until her diagnosis, so she looked upon her first chemotherapy session as an ideal opportunity for research for her next novel. Her diagnosis was treatable and curable, positive and hopeful, but she would give her heroine, Jolie Jansen, a very likely terminal prognosis. It would add a cutting edge to the fifteenth book in the series.

Jolie had not been nervous about her first chemotherapy session until the lady in the reclining chair opposite died.

‘Good morning.’ A nurse’s voice startled her out of the opening chapter forming in her head. What did that nurse say her name was? They all looked the same in their uniforms and masks.

‘Name and date of birth please.’

‘Emelda Forsyte, 5th July 1964.’

Even with a mask on the nurse looked very puzzled.

‘Oh sorry , I must have the wrong patient. I have you down as Jane Brown.’

‘No, I apologise, Emelda Forsyte is my nom de plume.’

The nurse looked even more confused.

‘I’m a writer, you know, my private detective novels, Jolie Janson, third series on ITV Sunday Drama set in the wilds of Bedfordshire.’

The top half of the nurse’s face still looked blank.

‘Ah, I’m not into all that crime stuff… so you are Jane Brown and your date of birth is?’

Emelda looked at the patients in the other three bays to check if they might be listening in, no doubt they were if they had heard there was a famous author on the ward. She removed her mask and mouthed something.

‘Sorry, I didn’t hear.’

‘10th May 1949’ Emelda whispered.

Emelda watched carefully as a needle was inserted into her hand, more than the slight prick she was told to expect, but hey, Jolie would not flinch, that was nothing compared to the injuries she had experienced. At least the blood being drawn out looked a good colour.

‘I suppose even those tiny phials of blood would be enough to clone me’ Emelda joked.

‘Oh no, they just go to the lab for testing, make sure you are well.’

‘Hmm, but if someone stole them from the lab I could be cloned.’

The nurse chose not to hear and slipped away.

In a short while she reappeared with a bag for the drip and another nurse who asked her name and date of birth.

‘I already answered that.’

‘We double check each time, just making sure the right patient is getting the right drug. This has just come up from the pharmacy with your name and details on it.’

‘That is reassuring, but have you ever had a rogue pharmacist, I mean there could be a fatal dose or a deadly poison in that bag.’

The two nurses exchanged glances.

‘Now dear, it’s quite natural to be nervous your first time, but you are in very safe hands, no need to worry.’

‘I am not nervous, just thinking about research for my next novel.’

‘Okay so let’s go through the prescriptions you have to take home. Now these injections must go in the fridge and on Friday the district nurse will start coming round to give you one injection each day.’

‘District nurses, do they still have them, she won’t be in uniform will she?’

‘Could be a he and they will be in uniform and PPE, you will be perfectly safe.’

All Emelda was worried about was the neighbours seeing, district nurses were what old people had visiting them. Hopefully they would have to park round the corner and not draw any attention. Then she had an idea.

‘How would I know they were real, could be an assassin in disguise with a lethal injection, like that chap who pretended to be doing Covid vaccinations.’

‘Just ring your surgery if you have any worries…’

Emelda examined the contents of the paper bag from the pharmacy and withdrew a box of tablets to read the instructions.

‘Read the leaflet inside carefully when you get home, you must take those tablets as instructed.’

‘So what would happen if you made a mistake, or your husband or daughter were in charge and intentionally gave you too many… or perhaps a wife might look at her husband lying in a drunken stupor and stick all those needles in him at once.’

‘Any mistakes and you must ring the hot line straight away or even dial 999. Who is at home with you?’

‘Oh I live alone, ditched Mr. Brown years ago and became Emelda Forsyte.’

‘I am sure you will manage your tablets fine, just remember to lock all your medication out of reach of you have grandchildren visiting.’

‘None of those thank God, humans under the age of twelve are to be avoided at all costs.’

Emelda was glad to be up and feeling fine, calling for a taxi and bidding farewell to the nurses who looked relieved to see her leaving.

‘Now take it easy and be prepared for the effects to kick in tomorrow.’

‘Oh I shall be fine, see you all in three weeks’ time.’

Before Emelda arrived back at the main entrance she was surprised to be stopped by a man in a suit who quickly produced a warrant card.

‘Mrs. Jane Brown?’

‘You would probably know me better as Emelda Forsyte, crime writer, is that why you stopped me?’

‘Never heard of her, I am only interested in Jane Brown; security gave us a call, your nurse rang the patient alert hot line about some inappropriate conversations and questions. Can you confirm you have just had a session of chemotherapy?’

‘Yes, it went very well, lovely staff, I don’t understand what you are saying.’

‘Hospitals have to be very careful that medication is not taken away to be misused, if we could go somewhere private to have a little discussion?’

‘No, you misunderstand, I was merely doing research, anyway I must go, taxi arriving any minute.’

‘I could invite you to come to the police station to help with our enquiries.’

For a moment Emelda was most offended, more because he had not recognised her as a famous crime writer than that he might think her a criminal. But this could be a research opportunity. Jolie Janson had more than her fair share of run ins with Bedfordshire Police, but Emelda had never actually been inside a police station…

In The Yellow Zone

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The group chat on chemotherapy for beginners I saw as a last chance to be out and about. I had been to a similar thing with Cyberspouse in autumn 2018. In those pre Covid times we all sat round a big table in a small classroom and it was a very jolly affair, with our English compulsion to make jokes in medical situations. Most people brought their spouses and there was tea and cake in the middle. This time we were in a church centre opposite the hospital in a large hall with spaced out chairs in rows. Everyone was heading for the back rows so I thought I would be helpful and choose the second row. A mistake as I couldn’t see everybody else properly. We were all given a home work pack and a cup of tea.

All you need to know from this chat is that chemotherapy kills fast growing cells, if it killed all cells we would be dead presumably. Fast growing cells include not only malignant ones, but those we need, such as white and red blood cells, also those we like such as our hair. All chemotherapy is different, a variety of chemicals depending on which part of you they are targeting and every patient can react differently.  What is for certain is we all lose our immunity and get fatigue, a variety of available drugs and vast medical experience should prevent nausea and vomiting these days. The Big message was Ring the Hot Line, the number on the Red Card, the number written on every piece of paper and leaflet issued. Any symptom that you normally ignore Ring the hotline from toothache to temperature.

That done I walked down to the shopping centre in the sunshine and headed for Beales’ department store, ironically still open, though its flagship store in Bournemouth closed down even before Covid. The new very bright café upstairs is quite spaced out and quiet, people are still asked to wear masks in shops, even though Boris says we don’t have to and I did not want to catch anything before my Covid test in a few days.  The top floor had turned into a clearance section and I bought a few little things plus my fabulous bargain of lined curtains, intended for interior decors, but ideal for my beach hut… once I have made a very big hem. Curtains are actually very heavy and I had to ask for a carrier bag which fortunately was environmentally friendly and edible.  The bus driver said how nice it was to see a Beales’ bag again. I felt like I had had quite an exciting day!

Isolating or not isolating for chemo in covid times is still rather vague, urged to be very careful, but told to carry on with normal life as much as possible. Friday saw me back at the hospital for a Covid test; this time I went straight home. Saturday night I cooked a roast chicken for the four of us, my daughter had a long weekend pass and Sunday we walked to the beach hut and went swimming. At this point I was feeling very fit, I have been walking more than five kilometres and doing loads of gardening…

Monday was chemo day at the cancer centre in the Yellow Zone of the hospital. My daughter took me. In pre covid days you could bring a friend for company. Now no extras set foot past the front desk. Having been told I would be there for four or five hours on the first visit and to bring things to do and lots of layers to keep warm with the cold cap, I was the only patient there with a large overnight bag. Our little ward had four reclining chairs and one young woman had a cold cap on, looking like something out of a brain transfer in a science fiction film. I asked if it was her first time and she said no and you get used to it.

As I had to have an anti nausea tablet which takes one hour to work, but lasts for five days, it seemed worth filling in the waiting time by at least trying the cold cap, which has to start forty five minutes before chemo. First your hair is sprayed with water, then a rubber cap on, then the metal helmet which must be tight fitting. Cotton pads are put on your forehead to stop it rubbing, but the water and pads made me think of the electric chair… The weight was probably worse than the cold in giving a bit of a headache, it turned out I could have brought my own paracetamol. You are allowed to stop if you don’t like it…

I was the only new person, one old / older lady said she enjoyed the day out and we had all chosen a hot lunch from the menu. My chemo actually only took seven minutes for red stuff in a syringe into the canula and then a drip for twenty minutes, but followed by another ninety minutes of cold cap. I was allowed to go straight away; three hours and ten minutes and I had only looked at my newspaper and phone, puzzle books and kindle untouched.

Back home I thought I would recline on the sofa with a cup of coffee and heard my daughter on the phone telling her brother and husband I was asleep on the sofa, no I wasn’t… later on I thought I would get up and get the washing off the line and water the garden, but I only took one thing off the line and felt wobbly…

In the days that followed I had seven daily injections given by the district nurse, these boost your white blood cell production. On the first visit she took my temperature and it was too high, so I did have to phone the hot line; fortunately it was borderline and I had no symptoms, so I was told to keep checking my temperature. In the following days I did virtually nothing and my mouth got more sore, another side effect, but I was still eating. So this was the famous fatigue; just like when you feel wobbly recovering after an illness only more so, wondering if you will ever leave the house again or how you could possibly have thought it would be easy to post blogs while you were stuck at home. This is just a tiny insight into what it must be like for people with long term chronic conditions and those who now have Long Covid. Apart from that there was nothing else to complain about and low and behold I was back pottering in the garden on Friday and walked round the block this morning. Tomorrow, two weeks after chemo,  is a visit to oncology outpatients to see the nurse, then Friday will be another Covid test and blood test to see if I’m ready for the next round…

In The Pink Zone

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If you are squeamish or do not like dark humour read no further.

One of the leaflets I received, produced by Breast Cancer Care is called Understanding Your Pathology Results, but most of us can only glean the meaning of some of the main terms. After all, the surgeon, oncologist and anonymous people in the laboratories have spent years studying human cells and what can happen to them.

When we went back to the Ladybird Suite ( pink zone ) to see the surgeon three weeks after my operation, the first item on the agenda was an examination. She pronounced the work of her colleague to be excellent; she was hardly likely to say ‘Oh my God, what on earth has he done!’ The whole area felt like a water bed, but this is normal, all those lymph fluids that were going into the wound drain bottle had nowhere to go, but eventually are absorbed – unless you are unlucky and have to have a bit of plumbing work done!

Then through the magic door into the consulting room where my daughter-in-law joined me as another pair of ears and moral support. The consultant said ‘We made the right decision to take everything away’ – she did not word it exactly like that. In layman’s terms there were lots of bits including quite a few lymph nodes.   ‘So all the cancer is gone BUT you Must / Need / We Recommend  chemotherapy followed by radiotherapy and then hormone treatment.’ WHAT!

Just because your aunt had a mastectomy years ago followed merely by tamoxifen for five years and your friend is just having radiotherapy, does not mean you will get away with it. Everyone is different and there are all sorts of tumours and grades. Basically our useful lymph nodes are also good at spreading cancer anywhere so the chemotherapy is a preventative attack. Next on the agenda was a CT scan of everything except my arms and legs to check if any cancer cells had turned up elsewhere.

No problems finding the CT place; I had already been to the blue zone for my MRI, not far from Costa Coffee and the main entrance. But somehow I couldn’t find CT. I asked at the MRI reception and she said We’re minus 1 you need to be on zero. Follow the green wall and turn left at the end, then go up in the lift. LIFT! I don’t do lifts, but luckily there was a set of stairs. There is not much drama for the CT, except you have to drink lots of water and have a canula put in your arm so dye can be injected. The scan doesn’t take long fortunately after all that water.

By the time the oncologist appointment came round it was the school holidays and Team H came to stay for the first part of their summer holiday, so my daughter could come with me. We went to town early so we could go to Marks and Spencer, actually try clothes on in the new ‘post Covid’ freedoms, though still wearing masks. Lunch out, still a novelty for me, then a stroll up the road to the hospital and back to pink zone. Oncology outpatients is down on Minus Two Floor, but strangely we were on ground level with a pleasant courtyard outside.

Our temperatures were taken ( Covid reasons ) and I was weighed and my height measured.

Warning  cancer jokes…

When my aunt was receiving treatment for secondary cancer ( yes it came back years later ) she joked to the nurse ‘Well I have discovered one thing, if you don’t eat you lose weight’ then realised the nurse was a very big girl.

The waiting room was quite nice with the usual relaxing seascapes; I thought it would liven things up if they had darker paintings like Edvard Munch’s The Scream or a few Hieronymus Bosch paintings of hell.

 We didn’t have to wait long to see the oncologist and my breast care nurse was also there for support. No one can force you to have treatment of any sort; it’s at this stage celebrities go off to live on a diet of raw vegetables and try alternate therapies. The rest of us do our best to make an informed choice and writer me likes asking questions.

The CT scan was clear, excellent news. But chemotherapy was still recommended. I asked about the base line of doing nothing; fifty fifty chance of cancer returning in the next ten years, the odds only going up by 8% with chemo. That didn’t sound much, but radiotherapy added another 7% and the five years of hormone treatment another something or other. Cancer could spread to the lymph nodes in the neck, which is exactly what happened to my aunt, though she had made it well into the new century and her eighties by then… My daughter was trying to read the indecipherable charts on the screen … Statistics don’t mean a lot, they could say forty % of patients who had no chemo died within five years, though some were in their nineties, others had heart attacks, a few got run over by a bus and one fell in a volcano doing his bucket list.

I had hardly any of the risk factors for breast cancer, so we can never make assumptions and you can never know for sure the alternative outcome. Nor can they tell you how the chemotherapy will affect you as everyone is different, except, annoyingly a guarantee your hair will fall out! What would you decide?

Yes, might as well give it a go. After I signed the consent form we went into another little room with seascapes to chat with the nurse about all the downsides and I had to decide if I wanted to book the cold cap, which may or may not stop your hair falling out.

Next on the agenda is the ‘group chat’ in the church hall opposite the hospital; learning about chemotherapy. Also a home visit by the community oncology support nurse and then start treatment on 23rd August. Everything is very efficient.

In the meantime I have been swimming in the sea and gardening and walking.

https://breastcancernow.org/

Twenty Four Hours

~ tidalscribe.com ~ 27 Comments

When I woke up there was a strange man in blue standing by my bed, then I remembered I was not at home. He spoke.

‘The operation went well.’

I felt a sensation of total relaxation, the sort of calm people spend hours doing yoga or meditation to achieve. I looked at the clock, it was 5.45pm. I had not woken up during the operation and it was all over, a quick feel revealed that the right side had been operated on. Now I need do nothing except lie there and relax.

It’s only now that my writer’s mind brings forth alternative scenarios, what might be said to you when you wake up…

‘I’m very sorry, the operation went wrong…’

‘You’re in hospital, you had a massive stroke when you were in the operating theatre six months ago…’

‘Do you understand, you have dreamt the past thirty years, you are not a writer, you are in a high security mental institution…’

Fortunately it was still Friday evening and I was soon down/along/up? on the surgical ward. The four bed bay was devoid of other patients, I was not by the dusty window, but sitting up had a view of the harbour. Dinner was not an option. I had been amused when my friend told me she managed to eat quarter of an egg sandwich over three hours after her operation and the walk to the bathroom made her sick.  A cup of tea and a nibble of ham sandwich was welcome. Getting out of bed is encouraged, a relief not to be involved with bed pans, but the walk to the bathroom did make me sick.

In the lead up to the hospital visit there had been much discussion on what I would take in with me. There were numerous leaflets written pre and post Covid and pre and post our three local hospitals suddenly deciding to call themselves University Hospitals Dorset NHS Foundation Trust and changing the phone numbers.

The main message seemed to be Don’t bring too much stuff, Don’t bring valuables. I was certainly not going to bring my brand new iPhone, which according to my younger son who looked it up after my older son bought it for me is very expensive! And I had managed to lose WiFi on it. I had brought my old phone which still had its sim card, but I couldn’t log in to NHS Wi-Fi in the pre op waiting room, because you had to confirm when they sent you an email and I didn’t get the email as I didn’t have any Wi-Fi… Nor was I going to bring any bank cards to log in to the bedside television, wifi etc which I was sure I would not be able to work; the leaflet said just bring small change. My Kindle would be enough entertainment, though it would be a shame to miss Gardener’s World...

I couldn’t imagine they expected every patient, however old or unconscious, to leap out of bed and rummage around in the locker for their smart phone to contact their family as soon as they arrived on the ward. Patient notes have next of kin and a phone number and you only want two messages sent to someone responsible ‘still alive after operation’ and ‘come and fetch me.’

It turned out they did try and ring the hospital but there was confusion over phone numbers and they weren’t to know how late I had gone down to the operating theatre…

A closer view of Poole Harbour

The nurse did ring my daughter so I sat back and relaxed for an evening of blood pressure and pain tablets, each time asked my date of birth, presumably to check I was still alive or still the same patient. One more patient arrived in the opposite bed. The nurse said she would be back at 11.30pm with the anti blood clotting injection so I didn’t bother turning off the light or tying to sleep. At 12.30am she still had not arrived and I wondered at what time my blood would start clotting.

At 1am I had the injection and presumably went to sleep because a cheery voice said ‘Good Morning’ and checked my blood pressure. I was looking forward to breakfast, but it looked very dark for a summer morning. When I asked the time the nurse said quarter to four! After a wander to the bathroom I asked the nursing assistant what time breakfast was – 8am. Then asked if I would like a cup of tea and a biscuit. YES

Custard creams, yuk, bourbon, no..  or  digestives. Yes please. When the mug of tea arrived there was a packet of three Crawfords digestives, I refrained from saying ‘Haven’t you got Macvities? and it turned out to be the best tea and biscuits ever.

Breakfast was a nice bowl of porridge and toast, all I could imagine facing when I ordered it the evening before. The elderly lady opposite was bed bound and mouthed something, I realised she was whispering I’ve had half my bowel removed. I got out of bed and searched for her lost pen unsuccessfully, then lent her mine so she could fill in her menu. Also I had a good look through the dusty window at the views and took photos, my old phone had come in handy for something.

Another view of the outside world

A doctor came round and said I could go home after lunch, so I went and had a wash, dispensed with the hospital gown and put on my new nightie. Any moving around involved lugging the wound drain bottle and the long length of tube I would be attached to for the next week or so.

I had just got back into bed and a different doctor came by and said I could go home right now. The nurse asked if I wanted to ring home. I tried to explain the phone situation and asked if she could ring. A sensible request as she knew the system and I didn’t. Getting from a ward to the ground floor and then endless corridors to the multi storey car park had seemed a logistical nightmare, but my daughter was told to park in one of the few bays near the main entrance and ring the moment she arrived and the nurse would wheel me down. A better exit than my arrival in my son’s builder’s van. On the way from the ward we passed the machine for purchasing access to the television which had remained perched up by the ceiling above my bed. I hadn’t even needed the small change as in Covid times no one comes round with trolleys and newspapers etc

My departure was exactly 24 hours since we had arrived thirty minutes early the day before and about 21 hours since I had gone to the theatre. Sunday would bring the district nurse on the first of the daily visits...