humour

Print Your Own Tablets

~ tidalscribe.com ~ 16 Comments

No more trips to the chemist to collect your prescriptions? No more standing in a queue while the beleaguered pharmacist looks for lost medicines and other customers collect paper sacks full of their repeat prescriptions?  Yes, no more trying to say your address and post code, your voice muffled by the masks we are still wearing in a ‘health care setting’. I heard the other day that in future we will use our 3D printers, which we will all have by then, to print out our tablets, probably combining more than one drug. Leave your computer on overnight to calculate the exact dose to suit your body mass and genetic make up. These tablets will be far more efficient, your doctor or consultant will no longer have to guess a dose that will work, but not blast you with bad side effects. Of course there is always the possibility we patients might accidentally give our computer the wrong instructions…

One thing many of us probably know about breast cancer is that you have to take tablets for five years after your main treatment, probably tamoxifen which comes from Yew trees. Looking this up I was rather disappointed to discover that it is taken from the bark of the Pacific Yew from North America. I had always fondly imagined scientists at dead of night picking berries from ancient yews in English churchyards. The early Christians built their churches on Druid sites; the Druids planted Yews as they regarded them as sacred; proven right because the Yew held the magic of healing.

It turned out that I am prescribed Anastrozole and I can’t find any romantic or ancient origins for it. Like tamoxifen it is a hormone inhibitor to protect against the types of breast cancer that love oestrogen. This is a tiny tablet to take once a day and because oestrogen is good for your bones I also have to take a very big tablet twice a day called imaginatively Adcal – D3, full of calcium and vitamin D3! Luckily these big tablets are chewed.

On my final appointment with the oncologist he said five to seven years, funny, he said five years earlier on! Perhaps I will be on Anastrozole long enough to be printing out my own tablets. Every breast cancer patient is under the hospital for five years after the main treatment, with breast care nurses at the Ladybird Suite – at my hospital, presumably other hospitals have other cute names – who can be contacted any time.

With one in seven women getting breast cancer ( six in seven Not getting it! ) at some stage, the system seems to run on very efficiently, with charities like Breast Cancer Now providing a great deal of information and help, from leaflets at the hospital to phone and on line help always available.

Breast Cancer Now | The research and care charity

Woodland Walk

~ tidalscribe.com ~ 15 Comments

Rounding off this week’s May walks, saunter across Tuckton Bridge to the Christchuch side of the River Stour.

Where are you now and who is watching you?

Perhaps you won’t get lost if you follow the path…

…and don’t annoy The Green Man

You have reached your destination.

Gather here for the monthly Win on Waste; to the delight of green thinkers or anyone on the obsessive spectrum you can save all sorts of household items unwanted in your council recycling bins. From stamps to old toothbrushes. At a glance the most popular donations seem to be medicine blister packs and bras. The various items are donated to charities, community groups and artists. Exactly how they use them I am not sure, but ‘follow the milk bottle top’ could be a topic for a blog…

Do you have local community collections?

https://www.sustainabledorset.org/win-on-waste/

Home Sweet Home

~ tidalscribe.com ~ 40 Comments

When we got married and moved into our police flat I knew I never wanted to be without my own home again. We didn’t own it, but home only needs to be where you are settled safely, not necessarily owned. Home also fans out to your own street, town and country, but our own tiny spot in the world is unique for most of us who rent or own only one home. An Englishman’s home truly is his castle and you don’t have to be English to want your own castle. In the five years previous to our wedding I had lived with grandparents, aunt and uncle, been a lodger with two very different families, stayed in a motel and experienced institutional living. Now a few days after my 24th birthday ( which seems very young now ) I had my own kitchen and window box – oh and not forgetting a new husband as well!

In the natural order of things, in times of peace, houses outlive their owners. The new house my grandfather bought in the 1930’s for his young family is still standing, extended and improved like most suburban houses and home to other families over the years. With the death of my uncle that first family are all gone. Google reveals that the Victorian terrace I was born in is still standing and looking much the same from the outside. My parents rented the top half and when they said we were going to buy our own house, when I was six, I couldn’t understand it as we already had a home. The house they bought is also still standing. If you come from landed gentry or royalty your home may well have stood for many centuries and may stand for centuries to come.

When we see whole towns wiped out by fire, flood or hurricane we may see survivors and be glad for them that they still have their families. But it is still devastating to lose everything, your home and your town. If we lose loved ones our home is still more than bricks and mortar, it is a sanctuary and a place full of memories.

Watching the terrible invasion and attacks on Ukraine, millions of us felt a connection because they were people who had ordinary lives like us and in the space of a few days lost their homes or had to leave them. The fact that millions of people in the world are homeless or live in slums and refugee camps does not make the suffering of the Ukrainians less. Rightly or wrongly there seems to be a real possibility to help them until they can return that we can’t realistically do for the whole wide world. Close neighbours such as Poland have come up trumps with their welcome while in the United Kingdom we are hampered by post Brexit bureaucracy.

Whatever obstacles are put in the way doesn’t alter the fact that many people in Britain have volunteered to take people into their own homes and that is a gift far greater than money. To share your home with distant relatives and strangers for an unknown amount of time is not a decision to take lightly. Supposing they never leave, don’t speak any English, don’t fit in with your routine… Many of us will applaud others while being secretly relieved we can’t because we only have one bathroom, have a full house already, need space when family come to stay…

When we were first married  a friend of ours, mainly through his own fault, was jobless and homeless and came to stay with us for a few days… yes you guessed, we thought he would never leave and in the end lied that relatives from Australia were coming to stay! We have had Australian relatives living with us without problems and my son and daughter-in-law are well on track to buying their own house and moving out soon. Would I have some Ukrainians or any homeless once I’m on my own? Well there is the question of only one bathroom and family needing to stay when they visit…

Have you ever taken in strangers to your home?

Florasaurus

~ tidalscribe.com ~ 24 Comments

Spring is here and gardeners rejoice. Even non gardeners who can only recognise daffodils enjoy the splashes of colour popping up. But few gardeners are up to date with the important terms connected to many blooms, so here is a handy guide.

Daffodillydallying When you linger in graveyards on a sunny spring day, tiptoeing among the swathes of daffodils to read interesting gravestones.

Primulary A garden, or more accurately the totally neglected piece of ground around your home, that you attempt to improve in a panicky couple of hours when you hear your garden fanatic parents are coming on a visit. You buy a dozen ubiquitous primula and stick them in the ground. Alas, your relatives will not be deceived into thinking you have lovingly tended your garden all year.

Cyclamental An obsessive condition where the sufferer is unable to go in the greengrocers or a DIY superstore without buying several pots of cyclamen.

Heliboring is a situation viewers of Gardeners’ World may be familiar with or perhaps you have family or friends in this situation. Among the viewers’ gardens and places of interest visited each week by Gardener’s World will be an avid horticulturist who has the national collection of Aquilegia ( see Aquilegiance below ) or Hellebore. This gardener has no interest in any other kind of flower, or any interest in anything else. They do not go on holiday or even out for the day as they must patrol their acres of 3,000 varieties of gladioli or delphinium, pollinating and preening.

Aquilegiance Loyalty to one species of plant, even though you will never attain the rarefied position of owning the national collection. Gardeners with such loyalty spend their weekends and holidays visiting famous gardens and searching for their special favourites. Their Instagram account features exclusively pictures of their favourite blooms.

Campanulaship That happy state when you feel the need for no other company than your campanula. These jolly bell shaped varieties inspired Liszt to write La Campanella, though he may have borrowed a few notes from Paganini, who probably also preferred the company of flowers and who doesn’t?

La Campanella – Adam Gyorgy (2007) – YouTube

Florasaurus is the official guide to floral terms and derivatives.

February Flash Fiction – Lens Lovers

~ tidalscribe.com ~ 14 Comments

‘…so next week it’s back in the hall; of course you can wear masks if you feel more comfortable doing so and the chairs will be spaced out.’

The chairman’s announcement was greeted positively by most members at the zoom meeting of the Lens Lovers camera club. Down in deepest Devon the local village hall was slowly coming back to life with activities, from Beavers to barobics, that had last been enjoyed early in 2020.

Paul Gibbons, New Member of the Year 2021, was horrified by the news, how was he going to get out of this? That he was a brilliant photographer was never in any doubt, all the images he shared on screen were his. The travels financed by his ill gotten gains had provided the opportunity to snap polar bears before they snapped him as he liked to joke. He did not mention that he was in a helicopter at the time. From the sands of Namibia to the trains of Siberia, from the Antarctic research station to local Devon scenes, he had tantalising tales for show and tell and had given regular talks far more interesting than their guest speakers.

It was Paul’s mother who had passed on the link to Lens Lovers’ zoom meetings; a friend from the old holiday home days had thought she might be interested. She wasn’t, she never wanted to see a camera again after her husband’s photography fatality, but she thought it would be an excellent diversion for her son during his lockdown. She had assumed he would tell the members he didn’t actually live in Devon.

Paul had not intended to deceive the club, but he had looked up their website and saw members had to live within a fifteen mile radius of the village hall to join, even for zoom meetings. At the time it had been a bit of a laugh, but he had become pathetically addicted to the fortnightly meetings. The many photos of socially safe lockdown rugged walks brought back childhood memories of more innocent times and then later the happy family holidays with his now ex wife and estranged children.

Zoom camera club hardly compared with his world wide adventures, but it was more exciting than Facetime with his mother and the weekly ‘Moving Forward’ sessions with the group. With digitally produced scenic backgrounds anyone on Zoom could be anywhere and his tropical island setting gave no clue to the cramped misery of his bleak bedsit.

Paul put on a smile for the squares of friendly faces as he rubbed his chafed ankle.

‘Yes, great news, though I might not be at every meeting, I think it’s time I booked a holiday.’

‘Oh well done Paul, does that mean you’re in remission?’

For a moment he wondered what Barbara was talking about, then remembered he had implied he had Multiple Sclerosis to explain why he had not been on the local outdoor shoots for fit, covid free members. Why had he mentioned holidays, he could have got away with implying he was still CEV, clinically extremely vulnerable. Though last week he had lied that he had just had his fourth vaccination.

‘Lucky you’, said Eddy, the oldest member ‘the only place I’m going is down Memory Lane.’

‘Well we are looking forward to meeting you in person Paul’ urged the chairman ‘and the hall is very disabled friendly, no trouble with your wheelchair and you can bring a carer, even if they are not a member.’

‘Oh thanks, all being well then…’

The only place Paul would be going on holiday was Memory Lane.

He glanced down at his electronic ankle tag, as if it might have miraculously disappeared. Even if he was living in Devon and not hundreds of miles away in a dreary city suburb, his curfew did not allow him out in the evenings.

Really Surreal

~ tidalscribe.com ~ 17 Comments

When you get back into town and nothing is quite how you remembered…

A jolly day out…
…meeting friends…
…for coffee…
Think the weather’s brightening up?
Shopping centre’s changed since I was last here.
Wonder what the new book shop is like.
…or the new department store?
Very nice, but I haven’t seen any human beings yet…

Normal Reality and Real Normality

~ tidalscribe.com ~ 26 Comments

Is getting back to normal life post Covid realistic? Are we Post, what is reality and what is normal life? No, don’t know and goodness knows…

Pandemics, epidemics and natural disasters have been normal for humans since we started wandering around, or at least wandering around in large numbers. Natural disasters were not disastrous before there were human settlements to destroy. Unless you were a dinosaur; even for them, getting back to normal life after a meteorite collision was never going to happen. Even Gaia was probably upset with giant meteors, just when she thought she controlled everything.

But for those of us who thought we were leading a privileged, or at least comfortable safe life before Covid, getting back to normal is what we both crave and fear. Some of us cannot have our old life back, while others are glad of the opportunity to start a new normal. Few of us believe our leaders have handled the crisis well all the way along. Every nation and state seems to have had different rules and while England is rapidly dispensing with restrictions ( I think, unless it’s all changed again ), on the other side of the world ‘Saint Mark’, Premier of Western Australia Mark McGowan, continues to try to protect the citizens of the Hermit Kingdom from Covid and the outside world.

‘In Western Australia, where there has never been a major Covid outbreak, Mr McGowan warned WA residents more restrictions could be implemented as new infections rise. With the state’s grand February 5 reopening now shelved indefinitely, tourism companies on the west coast will be unable to benefit when the rest of Australia flings open their doors to foreign tourists on February 21.’

https://www.wa.gov.au/government/covid-19-coronavirus

Of course it helps when your state is bordered by ocean and desert with only two roads in. Life has carried on more or less as normal. I don’t think people have been prevented from leaving, but they might not be able to get back in.

So where is normal life happening? The fewer restrictions the more worried are the hierarchy of the vulnerable. Clinically Extremely Vulnerable at the top perhaps, CEV a term to distinguish from those merely immunocompromised? However people are classified and however many jabs they have had – we’re up to four now – those worried about their health or their loved one’s health are still sticking to Zoom meetings, shopping on line and isolating.

But going back to normal is not good for the planet. However heart breaking this pandemic has been, Covid will not reduce the population enough to save Gaia, or rather keep her safe for us to live on. Have most of us forgotten we are meant to be saving the planet, have we forgotten how sweet the air was during that first world lock down, when streets were empty of polluting vehicles and people saw mountains from their city windows for the first time?

The new normal is unlikely to be a return to the simple life, or a rapid scientific breakthrough to heal Gaia while keeping our lifestyles. So it’s back to reality, unless you want to hide from reality with all the new skills you learnt during lockdowns. Have a pyjama day and hide under your duvet watching Netflix and ordering delicious meals from Deliveroo.

Farewell to Varian

~ tidalscribe.com ~ 37 Comments

My last radiotherapy session was on Tuesday. On Monday there was a phone call from the radiotherapy department; I wondered if they were ringing to say there had been a terrible mistake that morning and I had been given ten times the right dose. Not just double; it’s more likely a decimal point or zero might get misplaced… actually they just wanted to ask if I would mind coming in later as the engineer was coming to fix the machine… hmm wonder if it WAS working properly in the morning?

It was rather sad saying farewell to the lovely staff, though on the previous Friday I thought I might stay there forever. I had breezed out of the main waiting room after my treatment, yay it’s the weekend ( Not that there was anything special happening at the weekend except not going to radiotherapy ) saying farewell to the chaps drinking water getting ready for their prostate treatment. I sauntered up the corridor only to find the double doors closed and locked. This had happened to me once before. That time I had been relieved to hear voices behind me; some of the staff were going for their coffee break and swiped a card on a box. This time there was not a soul in sight or sound.

The welcome sight of open doors.

I returned to the waiting room, but there was nobody on the desk. Who to ask, who to find? One can hardly go barging into treatment rooms, or disturb radiologists in the control room when their patient is being irradiated. I could only hover by the changing cubicles hoping to catch someone collecting their patient. Fortunately, from another set of double doors that said Staff Only emerged a chap in plain clothes, one of the numerous persons, with lanyards and ID cards to distinguish them from patients, who stride purposefully up and down corridors and stairs. I alerted him to my plight.

‘This always happens on Fridays when they test the fire alarms.’

He went into detail about magnetic doors as we marched up the corridor. As we reached the doors he said

‘Hmm, let’s hope this works.’

I had assumed it would. Luckily it did.

Meanwhile back to my last session… The third zap above my collar bone, targeting lymph nodes, has been the only one where I can look up and see the square screen through which invisible rays are emitted. Strange shutters above the glass move in and out, up and down, but it is usually quick. This time things seemed to come to a halt. I waited for the familiar buzz, wondering if the machine had broken down and when no one spoke over the intercom, fearing they had all gone home. I was tempted to move my arm as my shoulder felt sore and I began to imagine the horrors of the rack or crucifixion. Then the buzzing started.

I was given a help sheet to add to my collection. The effects of the accumulated radiation carry on for another couple of weeks, not that I had had any bad effects.  I do now have a big square and a smaller square that look like sunburn. I had imagined the target areas being round. I was told to keep the area protected from the sun. ‘For how long?’ I asked. ‘Forever’ was the reply.

Remember to keep covered up at the beach hut.

Return to the Pink Zone

~ tidalscribe.com ~ 25 Comments

I was back in the Pink Zone for my Radiotherapy planning. Despite the long instructions in the letter for finding radiotherapy I was flummoxed when I found myself back in the familiar Oncology Outpatients. As it is on floor minus 2 and has a low ceiling I assumed this area was a dead end; unfortunate choice of words perhaps…

Luckily a lady in grey ( one of the health care assistants who pop up helpfully everywhere ) asked if I was lost and took me through a door that hadn’t been there before. Then she asked if I wanted Chesil, Furzey or Varian. I had no idea what she was talking about so produced my appointment letter ( always take your hospital letter with you ) and she took me to reception. I was soon given a gown and taken to get changed in a cubicle with the fatal words ‘Just come back to reception when you are ready’ assuming you are going to remember the way back…

I did find my way back and was soon in a room having a CT scan and lots of measurements taken. They give you four tiny tattoos as guide lines, apologising that they will be permanent. I am hardly likely to worry about that when I have a long scar and no breast, but at least they are acknowledging you still own your body. I asked for a butterfly tattoo, but they said they don’t have the artistic skills.

When I arrived for the start of my fifteen daily treatments ( weekends not included ) a couple of weeks later, I smugly assumed I knew where I was going, but at reception she asked if I was Chesil, Furzey or Varian.  No idea, but she soon returned with the answer. I had to find Varian 2 and was directed to turn and follow and turn down several corridors. Every time you go through a double door a whole new hospital seems to unfold before your eyes…

Chesil and Furzey are local place names, but who, what or where was Varian? Lord Varian, the famous Dorset benefactor or Planet Varian from Star Trek… ‘Captain, the Varians are attacking.’

Varian is the manufacturer of the machines under which we patients lie in treatment rooms Varian 1 and 2. We arrive at the pleasant Varian waiting room from where we are called to the sub waiting room on the intercom. There we change into the gowns with three armholes which we are allowed to keep for all our sessions. From here you can see the lighted red warning signs when the radioactivity is active and staff must leave. The radiologist soon comes to fetch you and take you round the curving corridor. The actual zapping with rays is brief, most of the time is spent adjusting you to exactly the right position with the two radiologists talking numbers and degrees. They take a three year degree to learn all this. The weird grey machine makes various beeps and noises, but all we have to do is keep our arms raised holding on to the bars and stay completely still. When out of the room the staff are watching you on closed circuit TV and you can wave to them if there is a problem… All the staff are very friendly and reassuring.

 After a few sessions I thought I was getting the hang of the routine; three buzzes and staff must leave the room. I have three zaps from three different directions and in between, the Great Varian grinds and moves. A long buzzy beep is the actual dose of rays. One time it had just started when the room lights suddenly came on. Over the intercom a voice said ‘Don’t worry, we have an interlock, we just have to wait five minutes before we can restart.’

This was definitely out of Star Trek… ‘Captain we have an interlock with the Varian ship.’  I was about to go through a time shift or into another dimension. After what seemed like twenty minutes the voice said ‘Only two more minutes to go.’ The staff returned and so did normality.

All my appointments have been quite early and very specific times. 9.06am, 9.18am 9.03. I have usually been called in on time or early, but one morning I was sitting by myself, no one on the reception desk and the screen said Varian Two On Time.  Time passed, other patients came in and we compared appointment times. I was first, what was going on? After the interlock incident of the day before I wondered if the machine had broken down, but why had no one come to tell us? Had Varian Two taken all the staff through a time shift or zapped them all with a mega dose of radiation… more time passed and at last I was called. The explanation was more prosaic than my imaginings. They were busy, short staffed and had no time to update the screen in the waiting room.

Strangely, my trips down the corridors have got shorter with familiarity.  The route is lined with paintings and the area is bright and pleasant. The shiny wooden floor squeaks when anyone walks, it is not just my new shoes.  A look at the health ap on my phone shows I have walked less than a kilometre from the hospital main entrance and back again, not the miles it seemed.

Some of the questions I have been tempted to ask as a writer, but haven’t yet…

‘Do you get many patients who panic?’

‘Has anyone accidentally been given a mega dose or forgotten about?’

‘Have you ever had a rogue/insane radiologist who tampered with the machine?’

As a patient I don’t think I will ask as they are all very professional and sane and nice…

Naturally Laterally

~ tidalscribe.com ~ 24 Comments

I had a hospital appointment the day after our delayed Christmas, for planning, which sounds more like a council department, but is to measure up for radiotherapy. Handy hint – always re-read your hospital letter the night before. I was supposed to do a lateral flow test. I had never done one as I have had regular PCR tests at oncology outpatients during chemotherapy. Luckily Team AK had half a dozen boxes someone had given them as the tests were hard to acquire over the Christmas season; the whole country had been told to do them frequently before visiting. Luckily Team H were still with us, with school and work they do them all the time. Fortunately I wasn’t on my own as chemotherapy has left me with peeling finger nails and peripheral neuropathy, making undoing or peeling open anything difficult. I read the instruction booklet carefully, set the kitchen timer and announced I must not look at the test result for thirty minutes. ‘No, twenty minutes’ said someone. ‘You have to check for the pink line after five minutes’ said another.

‘What pink line?’

There was no pink line, the test was null and void. It was suggested there was not enough magic fluid in the squeezy phial. Two more test kits were opened so we could use two phials. The pink line appeared and in half an hour I had a result. My son-in-law said I had better photograph the result in case I needed proof. It had taken a team of five, three tests and two self assaults on my throat and nose to get a negative result. Thank goodness I had not left the procedure till the morning.

Not all tests are exactly the same I gather and they probably have different names according to where you live. I wonder how anyone living alone with bad eyesight or hands that don’t work one hundred per cent manages to do these tests, let alone busy parents who are expected to test their children every time symptoms or contacts occur. I have also concluded from my limited circle of family and friends that we are divided over testing, the same as we are divided over mask wearing. Some families test continually and demand the same of visitors while others have never taken a test.

Parents with school children are testing frequently. Fortunately a positive result in children usually means mild symptoms and time off school, yet again…  A recent survey reveals that since the school term started three out of four grandchildren now have Covid…