hospital

Tuesday Tiny Tale – Operating Theatre

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It’s the sort of article you read in the tabloids or the rabbit hole you fall into when you are tempted to scroll down on the internet. There was a boy at junior school who always had ghoulish ‘true stories’ to tell. I was never sure whether to believe him, but we wanted to and it was a bit dull in class after he moved away.

When I became a sardonic teenager I realised how ridiculous his tales had been, though I would have given him credit for his imagination if we ever met again.

As I turned into a sensible adult a strange thing happened; television documentaries, tiny cameras in operating theatres and Wikipedia provided real true stories. It turned out that there were girls with two heads and boys with four legs. The stuffed two headed lamb we saw in a glass case at the ‘House of Horrors’ on holiday had nothing on real two headed people who talked on television and went to school. Yes, real life could be truly bizarre and nature played jokes.

When I started getting mystery pains, or rather when I could no longer ignore mystery pains and the strange lump I could feel, I went to the doctor. An appointment came through for my scan, can’t remember which machine it was, but it made lots of noise and I did not like being in it. Of course the operator is not allowed to tell you anything and just mumbled something about a report going to my GP. I was just glad to get dressed and get out of there down to the hospital Costa Coffee. I was beginning to relax with my strong coffee and a lemon tart poised towards my mouth when my mobile rang.

‘This is Doctor Jekyll, are you still in the hospital grounds? Good. Have you eaten anything in the past couple of hours?’

Puzzled I put my lemon tart down.

‘Good, now there’s nothing to worry about, but I would like to examine you and possibly do an exploratory operation. As soon as possible. Now. No you don’t need to know where to go, I’m sending someone down to fetch you.’

I didn’t even get a chance to finish my coffee before someone in a uniform appeared and guided me into the depths of the hospital. It was not long before I was undressed and lying on a couch, being prodded and monitors applied. One good thing, I knew I was in good health, heart and everything working properly and fit for surgery. I was just about to ask when the operation was going to take place when the next thing I knew I was waking up in the recovery room with all sorts of tubes attached to me.

Doctor Jekyll was at my side promptly.

‘The good news is, it was not a malignant tumour. The bad news, it was a very complicated operation and the surgery was invasive.’

‘I don’t understand, what did you find?’

‘A baby.’

This would be a shock for most people. It was certainly a shock for me as I am a man.

‘How on earth…are you trying to tell me I’m a hermaphrodite?’

‘We don’t use that term these days, but you are not. Now you have heard of conjoined twins? Yes of course, but have you heard of parasitic twins? So you have seen old drawings and photos of people with partially formed bodies appended to themselves on Beetleypete’s blog… who or what is that? No I’m not a blogger, never heard of WordPress. Now I need you to pay attention. Your parasitic twin just happened to be completely inside you, very unusual and it… he seems to have been having a development spurt, otherwise you would not have noticed.’

‘This is a bit hard to take in, but at least I’m rid of it. How soon can I go home, I’m feeling okay.’

‘That’s all the pain killers, you have had a very serious operation and you will be monitored in intensive care. But we also have an ethical problem. We managed to save the baby.’

‘WHAT! Um what are you going to do with it?’

‘Him… well at the moment he is still attached to you by his, for want of a better word, his umbilical cord. Now do you want to see him before we discuss how to proceed? ‘

I thought of that boy at school, he would have wanted me to look, ready to relate the story to anyone who would listen. Somehow my schoolboy morbid curiosity took over and as instructed by the doctor I turned my head to the other side of the bed and there in an incubator was my baby brother. Or more accurately, if you put a pair of glasses on him he would be an exact miniature replica of me.

March Monday Musings

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Yes it’s here again. Less stressful than the no plastics challenge, this is a way of counting how much plastic packaging is being produced, started by a chap who saved his plastic waste for a year, was shocked and created an art work with his collection.

This morning was recycling bin collection, we have alternate weeks for Big Bin and the Small Bin for rubbish we can’t recycle or compost. Into Big Bin goes glass, paper, tins, plastics… except soft plastic. But not to worry, our local Co Op stores have a bin for soft plastic, clean dry soft plastic. What an opportunity for dedicated obsessive recyclers, carefully washing out the film they peeled off the fish package… There is also a little brown bin for all food waste, but we are not counting that!

The count is for every piece of plastic, whether thrown away or carefully recycled. I did this last year so I was ready for action, but what category is the tiny tube that the flower food came in with the Mothering Sunday roses?

Has anyone else joined in this or done a similar thing or do you think it’s a load of rubbish?

If you don’t follow Royal stories you might view the following thoughts as rubbish, or perhaps like many of us you can’t resist a good medical tale.

Amidst the awful things going on in the world there has been fraught discussion about the health of the Princess of Wales, coming along at the same time as King Charles’ medical story. Catherine went in for planned abdominal surgery and had a long stay in hospital followed by resting at home. Like all good husbands the Prince of Wales took time off to look after her when she returned home. Nothing was disclosed about what her condition might be, except it is not cancer. Who would want their insides discussed endlessly in public, or their children hearing their mother’s medical history discussed?

On Woman’s Hour this morning the presenter said she was not interested in knowing. Really? Lots of us are, but don’t go blabbing on social media, just may have chatted in private with our friends or sisters who happen to be doctors! Just harmless wondering… Anyone who has been in and out of hospital in a day or two will naturally wonder what could possibly take such a long recovery. Perhaps we want to check if it’s a condition we haven’t heard of, but need to worry about. Women the same age or with daughters in that age group could be concerned…

Now the medical story has been turned into a ridiculous frenzy because of the digital altering conspiracy. The pleasant family photo taken by Prince William for Mothering Sunday may not be ‘true’, though today Catherine admitted that she did a bit of digital altering, like millions of people do with their cameras and smart phones.

WARNING, THIS MAY NOT BE A GENUINE PICTURE OF THE ROYAL FAMILY

How has your Monday been?

Identity Crisis

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Luke wished he could take his legs off, it was turning into a long evening. He had not expected the Clacket Lane Junior School Reunion to end with police questioning. Taking over the identity of the deceased Nigel Palmer had seemed a good idea at the time, a chap with no family or partner was not going to be missed. Nigel Palmer himself, who ironically died with his limbs intact, would not miss his passport and his wallet containing money, bank cards, NHS number and private health insurance details. The original plan had just been to return to England as a different person, start again. But the new life was halted before it started when Luke lost both legs above the knees. Ever one to look on the positive side, Luke realised that Nigel Palmer was going to get much better treatment and rehabilitation than Luke the Loser.

Now Luke cursed himself for thinking it a good idea to attend the reunion. The plan was to round off his knowledge of Nigel’s life, feel like a real person. Who could have predicted another Nigel impersonator would already be there.

At the hospital a police officer was interviewing an injured man who admitted he was not Nigel Palmer, obviously a man with mental health issues, his explanation made no sense. He had tried to escape from a hotel, but only escaped with minor injuries after the fire brigade had demolished half the gents’ toilet to release him from a window frame.

Back at the police station Detective Sergeant Dilly Deans finished interviewing the man with bionic legs. He was obviously the genuine Nigel Palmer, all the checks had come back positive. Goodness knows why that dreadful woman organising the reunion had insisted he was an imposter, just because he could not recall much about his junior school days, who does? His traumatic injuries had left him with gaps in his memory and all the poor man wanted to do was fill in the gaps.

‘I am so sorry we detained you Mr. Palmer, night duty will give you a lift to where you are staying.’

In his hospital bed Nicholas could not get to sleep, he was not at all sure what was going to happen next, would he be charged with any crime? One good thing had come out of this, more ideas than he expected for his new novel. A man who has a breakdown and wakes convinced he is Johnny, his classmate at junior school. While psychologists try to assess his rare condition the real Johnny confronts him and has old scores to settle…

Tuesday Tale – A Stranger in 2022

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When I finally woke from my three year coma everyone said I hadn’t missed much and proceeded to gabble on about Covid and lockdowns. i had no idea what they were talking about.

It seems they had been talking to me a lot ’once restrictions were lifted’, another mystery. I do not remember a single word they said, so that was a waste of their time. Only my dearly beloved had the sense to give up early on, no great loss, though apparently ironic as the accident was his fault.

They insisted on showing me The Facebook Page. How embarrassing, I didn’t know I had so many friends, or maybe everyone feared not being seen as caring. Celebrities, what was that all about? Why on earth would I want some gloating multi millionaire author pleading with me to get better and finish my novel? From what I recall it was a load of rubbish. As for the music, who on earth thought I loved Andre Rieu and Andrea Bocelli?


Anyway, all I wanted to do was get out of that hospital and explore 2022 on my own, the lot of them could go and get…. can’t even remember any swear words. What was I saying, oh yes, I had interviews with rehab people and got myself free three months, or was it three free months at Mellowmead sports centre. But it turns out ‘everything’s changed since Covid’. You can’t just walk in and ask for an adult swim and head off to the changing room. You have to go through the Portal, get the Ap, book on line. The Mellowmead Active website was a nightmare. ‘Just look for Mind and Body Studio and search wellness pilates and moving forward easy circuits’ said my physio.
At last I arrived with my new bright orange plastic Mellowmead Active membership card. ’I think I am booked in for 2.30 wellness pilates, where do I go?’
‘Just touch your card at the barrier, if it opens you are booked in’ she said, without looking up from her computer screen.

Print Your Own Tablets

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No more trips to the chemist to collect your prescriptions? No more standing in a queue while the beleaguered pharmacist looks for lost medicines and other customers collect paper sacks full of their repeat prescriptions?  Yes, no more trying to say your address and post code, your voice muffled by the masks we are still wearing in a ‘health care setting’. I heard the other day that in future we will use our 3D printers, which we will all have by then, to print out our tablets, probably combining more than one drug. Leave your computer on overnight to calculate the exact dose to suit your body mass and genetic make up. These tablets will be far more efficient, your doctor or consultant will no longer have to guess a dose that will work, but not blast you with bad side effects. Of course there is always the possibility we patients might accidentally give our computer the wrong instructions…

One thing many of us probably know about breast cancer is that you have to take tablets for five years after your main treatment, probably tamoxifen which comes from Yew trees. Looking this up I was rather disappointed to discover that it is taken from the bark of the Pacific Yew from North America. I had always fondly imagined scientists at dead of night picking berries from ancient yews in English churchyards. The early Christians built their churches on Druid sites; the Druids planted Yews as they regarded them as sacred; proven right because the Yew held the magic of healing.

It turned out that I am prescribed Anastrozole and I can’t find any romantic or ancient origins for it. Like tamoxifen it is a hormone inhibitor to protect against the types of breast cancer that love oestrogen. This is a tiny tablet to take once a day and because oestrogen is good for your bones I also have to take a very big tablet twice a day called imaginatively Adcal – D3, full of calcium and vitamin D3! Luckily these big tablets are chewed.

On my final appointment with the oncologist he said five to seven years, funny, he said five years earlier on! Perhaps I will be on Anastrozole long enough to be printing out my own tablets. Every breast cancer patient is under the hospital for five years after the main treatment, with breast care nurses at the Ladybird Suite – at my hospital, presumably other hospitals have other cute names – who can be contacted any time.

With one in seven women getting breast cancer ( six in seven Not getting it! ) at some stage, the system seems to run on very efficiently, with charities like Breast Cancer Now providing a great deal of information and help, from leaflets at the hospital to phone and on line help always available.

Breast Cancer Now | The research and care charity

Farewell to Varian

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My last radiotherapy session was on Tuesday. On Monday there was a phone call from the radiotherapy department; I wondered if they were ringing to say there had been a terrible mistake that morning and I had been given ten times the right dose. Not just double; it’s more likely a decimal point or zero might get misplaced… actually they just wanted to ask if I would mind coming in later as the engineer was coming to fix the machine… hmm wonder if it WAS working properly in the morning?

It was rather sad saying farewell to the lovely staff, though on the previous Friday I thought I might stay there forever. I had breezed out of the main waiting room after my treatment, yay it’s the weekend ( Not that there was anything special happening at the weekend except not going to radiotherapy ) saying farewell to the chaps drinking water getting ready for their prostate treatment. I sauntered up the corridor only to find the double doors closed and locked. This had happened to me once before. That time I had been relieved to hear voices behind me; some of the staff were going for their coffee break and swiped a card on a box. This time there was not a soul in sight or sound.

The welcome sight of open doors.

I returned to the waiting room, but there was nobody on the desk. Who to ask, who to find? One can hardly go barging into treatment rooms, or disturb radiologists in the control room when their patient is being irradiated. I could only hover by the changing cubicles hoping to catch someone collecting their patient. Fortunately, from another set of double doors that said Staff Only emerged a chap in plain clothes, one of the numerous persons, with lanyards and ID cards to distinguish them from patients, who stride purposefully up and down corridors and stairs. I alerted him to my plight.

‘This always happens on Fridays when they test the fire alarms.’

He went into detail about magnetic doors as we marched up the corridor. As we reached the doors he said

‘Hmm, let’s hope this works.’

I had assumed it would. Luckily it did.

Meanwhile back to my last session… The third zap above my collar bone, targeting lymph nodes, has been the only one where I can look up and see the square screen through which invisible rays are emitted. Strange shutters above the glass move in and out, up and down, but it is usually quick. This time things seemed to come to a halt. I waited for the familiar buzz, wondering if the machine had broken down and when no one spoke over the intercom, fearing they had all gone home. I was tempted to move my arm as my shoulder felt sore and I began to imagine the horrors of the rack or crucifixion. Then the buzzing started.

I was given a help sheet to add to my collection. The effects of the accumulated radiation carry on for another couple of weeks, not that I had had any bad effects.  I do now have a big square and a smaller square that look like sunburn. I had imagined the target areas being round. I was told to keep the area protected from the sun. ‘For how long?’ I asked. ‘Forever’ was the reply.

Remember to keep covered up at the beach hut.

Friday Flash Fiction – 550 – Through a Glass Darkly

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Geoff opened his eyes, what just happened… a funny turn and where was Jill? The living room looked strange, not straight, his eyes, should have made an appointment about that headache, but surgery busy doing Covid boosters… opticians, ring tomorrow.

The rest of him felt odd, don’t say he had Covid, Jill would kill him just before Christmas, only a week since he had the booster, not kicked in yet? He wished now he had bothered to get some of those lateral flow tests, could check, eliminate that before panicking. Right, let’s see where Jill’s got to. Ow. Geoff bumped his nose on something. He tried to put his hands up, but couldn’t feel his arms, or his legs. A stroke, God no, not a stroke, vegetative state and all that. Surely Jill would come and call him for dinner, call an ambulance, speed was of the essence, but all the ambulances were queued up at the bloody hospital, full of patients waiting to get admitted. Jill – illll – no use, he couldn’t talk.

It wasn’t painful, the opposite, he felt as if he was floating. But why couldn’t he hear the television, the news was on when he got up to check the pump in his tropical aquarium. There was Jill, sitting on the sofa doing the crossword! Bloody hell hadn’t she noticed what happened to him? She did look strange. If he took a deep breath perhaps he could summon the strength to yell. His breathing felt odd, he was feeling warm and sleepy…

Something nudged Geoff’s shoulder, paramedic at last? He half turned and let out a silent scream. This wasn’t Jill towering over him, or a paramedic; it was a mermaid. Staring, unmoving, he recognised her, that red hair. Huge plants waving round her shoulders and behind her a gaping mouth, an ugly creature that could only have come from the depths of the ocean.

Hallucinating, that’s what was happening. Intensive Care, Stroke or Covid, didn’t make much difference, still helpless, but if his mind recognised what was happening he could fight for survival. Jill sitting nearby, nurse looks like just like that ghastly mermaid ornament the grandchildren gave him for the aquarium, had to put it in to please them, no wonder it was giving him nightmares.

Noo… keep away, yellow and black stripes, those bulging eyes…  sharks as well… I know you’re not real…

Oh hello Marica, no I’m not busy, glad you called. I’m just relaxing doing the crossword, watching the fish. I never took much notice of them before, but they are very soothing, except for that new one the grandchildren bought me after Geoff died; it keeps staring at me. No I am feeling okay, I’m just worried the poor fish isn’t settling in. I know it’s only a fish, that doesn’t mean it doesn’t have feelings. It circles that ghastly mermaid ornament then comes back to stare at me. No of course I don’t believe in reincarnation and nor did Geoff. At least you had time to talk about the meaning of life with poor Mick. Geoff didn’t have a chance to talk about what he thought, gone just like that. I went to tell him dinner was ready and there he was lying on the floor by the fish tank.

FOR MORE TALES WHERE ANYTHING CAN HAPPEN, CHECK OUT MY SHORT STORY COLLECTIONS.

Hot Line

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When we had our beginners’ chemotherapy group chat I was sure I would not be calling the Hot Line, despite the long list of reasons we were given for calling it. I don’t like making phone calls or bothering people. First reason is if your temperature is above 37.5 degrees Celsius ( 99.5 Fahrenheit ) or below 36. A high temperature may be sign of an infection and if you have just had your immunity zapped this can lead to the frightening sounding Neutropenic Sepsis. My expensive Boots thermometer handily beeps once for normal range, three times for 37.5 or over and goes berserk if you hit 38 degrees.

The first time I rang the hot line, early on a Sunday evening, the nurse asked me lots of questions and I answered No to all of them. I thought I had got away with it, then she said ‘I’ll just chat to the doctor and call you back.’

She rang back and said ‘Come straight to Accident and Emergency and bring an overnight bag. Our team are on till eight o’clock and we’ll meet you there to do emergency blood tests.’

WHAT, I was getting a whole team to myself?

She soon rang back to tell me to come straight to the oncology ward. My son had been about to serve up dinner…

Blood tests are to check for infection and you have to wait for results. An injection of antibiotics straight away, just in case and a thorough check up with the doctor who said I looked well. Because it was only seven days since my chemotherapy and week two is when your immunity is at its worst, they had decided to call me in. If there is an infection it means an overnight stay on an antibiotics drip. Yes you guessed, my blood tests were all fine. I asked how often I should take my temperature, they said once a day was fine.

I kept an overnight bag ready after that and it wasn’t long before I had to call again when my temperature was 38degrees. ‘Can someone bring you in?’

I looked out of the window and the road was completely deserted. Neighbours and friends are always saying  ‘Don’t forget if you need any help, lifts etc’ but of course you don’t actually know what everyone is doing on the spur of the moment… working from home, but probably doing a conference call to New York… It occurred to me that I could just call a taxi (memories of elderly relatives saying ‘oh yes, our taxis are very good’ ).

They are very good, even though a robot answered. It knew my address, creepy, I have only used them a few times ever. We soon established where I was going, the fare and then the robot said it would be there in four minutes – the taxi not the robot. Frantic dash to lock up the house and get ready.  Perhaps the fact that there are always several of the company taxis parked up in a quiet road round the corner helped.

This time I had missed my lunch, but I did get a sandwich, luckily as I was there all afternoon. Fortunately the bloods were fine again and all that was left to do was a urine sample, with complicated instructions involving a bowl and a cardboard bed pan in the spacious disabled toilet I was sharing with two men in our bay. But I was getting off lightly as I heard a nurse saying to a chap in the corridor ‘Wee in the bowl and the poo goes in the paper bag.’

I was relieved to be going home, especially as I had forgotten to put my Kindle or any book in my overnight bag, that would have been a nightmare. It was now 5.30pm, a call for a taxi produced a message saying there was a forty five minute delay, so as I was feeling fine and they said I was fine I just crossed the road to the bus stop.

My third call to the hot line was for a tender spot on my upper chemotherapy arm and I asked if it could be blood clot, the nurse said it was just a bit of inflammation. I should have rung back again sooner, but several days later I spent the afternoon at the hospital. I was in a bay with three other ladies, the eldest of whom looked very grumpy. Blood was taken, but when the doctor came she was sure it was a blood clot, not an infection and I needed an ultrasound, but she couldn’t book me in till 8am tomorrow.

Luckily, after a while there was a flurry of activity and a nurse came to gather several of us to go down to ultrasound. Grumpy Lady suddenly piped up and said ‘I’ve been waiting seven hours for my kidney scan.’ No wonder she had looked so miserable.

It was a peripheral blood clot, not serious like deep vein thrombosis. Back on the ward I had the first of two months of blood thinning injections. I administered it myself to prove I would be able to do them at home. As I was getting ready to go a nurse came to Grumpy Lady and told her she was ready to take her down to the ward. She looked surprised as no one had told her she was staying in overnight.

Chemo Club

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Yesterday morning I had session Three of chemotherapy and the cannula went straight in, all positives, so I wanted to do a quick blog. The only hiccup was something going on in the hospital pharmacy and they neglected to tell any of the staff on the ward that there would be delays so they could phone us all to come in later. We all had to wait for our drugs. But the four of us were so busy chatting from our socially distanced chairs that time flew. Three ladies with more problems than me and all different cancers ( though I did have the trump card of being widowed ) and great senses of humour. We talked about everything including the after life. I am part of a real club! And I should add that we all agreed the medical staff are great.

How did you all manage without Facebook etc yesterday! Of course I thought it was technical problems Chez Tidalscribe till I tuned in to that much older medium the radio and The News!

It is a good while since I was working on a novel, with all that’s been happening, though I have never stopped writing short stories. I keep wondering how on earth I managed to write forgetting that I have written five novels. I think Three Ages of Man remains my personal favourite, it is the second of the trilogy, but can also be read as a stand alone novel. It is about ordinary folk, but they do tend to have extraordinary experiences and you may find out how we are going to manage the planet and our health in two centuries’ time…

Needles

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Week Three after my first chemotherapy session included an appointment to oncology outpatients to see a nurse. I told her how fit I was feeling and she reassured me the fatigue would get worse each time  ( perhaps she said slightly worse )  and it was amazing how fitness levels dropped. She also said this was the week when hair thins… but she did order me mouth wash for next time; sore mouth and food tasting like mashed cardboard is probably the worst part. But like the fatigue it had suddenly got better and food tasted wonderful.

Sure enough, two days later my hair did start falling out; yay, no need to bother with the cold cap next time and I could get out my collection of colourful scarf/hat Chemo Chic wear, mostly ordered from Hannah Bandanna. It didn’t all fall out and I look rather like my grandmother, who even when I was young had very sparse wispy white hair. We just took this as being what a grandmother looked like, along with the large pink plastic whistling NHS hearing aid box that hung on her chest. Now I wonder if the hair loss was upsetting for her and was it the stress of bringing up three children while Granddad was away in World War Two ( away in Southport with the civil service, not on the front, he had already done that in WW1) or perhaps genetic, her sister was completely bald and hung her wig on the bed post overnight.

May not be accurate representation of Tidalscribe

UK Stylish Chemo Hats And Headwear For Cancer Patients. (annabandana.co.uk)https://www.annabandana.co.uk/

Sunday ‘chemo eve’ I went with my son to the beach hut and we had a swim in the sea. He probably got more than he bargained for; walking along the cliff top we met a couple I know, who hadn’t heard about the big BC. He has lung cancer so lots to chat about!  On the way home, walking along the promenade, we met more friends at their beach hut and she recalled her bowel cancer   treatment…  You’re never alone with cancer!

In the ward on Monday was the young lady from last time with a full head of hair and about to put on the cold cap, proof it can work. The lady opposite me was sitting quite happily with her bald head uncovered. They were trying to put in her canula, while she repeated she didn’t usually have any trouble. At the chemo group chat the sister had said they can always find a vein. I gather putting a canula in is a nerve wracking rite of passage for medical students and I would certainly not like to try putting a needle into and not straight through a thin or even invisible vein.

Smugly I assumed mine would go smoothly, but my nurse also had trouble. I have only one arm they can use – the arm of the lymph node removal is apparently out of bounds for everything including doing blood pressure. Inevitably the desperate tapping of veins etc has to be performed with the patient looking on, which can’t help, but third time lucky. Meanwhile it was about fourth person lucky, a nursing assistant, who managed to get into the vein of the lady opposite.

The ‘red poison’ is put in slowly by syringe; it is so strong they must keep a close eye to make sure it doesn’t go into surrounding tissue. The second drug just goes in by drip and was only supposed to take fifteen minutes, but no sooner had I messaged my lift that I wouldn’t be long than the alarm beeped. The drip had come to a halt; much tapping of the tube and fiddling with the box the tubes feed through between the bag and the arm. In the end the nurse removed the yards of plastic tube, dumped it all in the bin and started with a new length of tube; an idea I had been tempted to suggest myself. All was well until just two minutes left when it stopped again, luckily she was able to restart.

Soon I was ready with my bag of prescriptions to take home, the large bottle of mouth wash making it deceptively heavy. I followed the WAY OUT signs, but luckily paused at the entrance to rearrange my stuff and glancing in the prescription bag realised the seven day course of injections ( which stimulate white cell growth ) was missing. The centre is actually in temporary accommodation in a large ward while the regular place is being upgraded; I had great difficulty finding my way back through the maze of desks, little rooms and other bays till I found Bay Three. My needles were still in their fridge.

At home three days later I was waiting for the district nurse to come and do my first injection, they can call any time between 8am and 5pm, but I had this funny feeling the hospital may not have contacted them and phoned up before noon to make sure. No they did not have me down and did I have the prescription form? NO, I had not thought to look in the bag and check. They cannot do injections without the oncologist’s prescription form on which they have to stick a tiny label peeled with difficulty from the syringe and write the date. What number to ring? After searching through my bundles of information I had no idea, but actually phoning the main hospital number and working through the options is the easiest approach and I did end up in the right place. The nurse said notification should have ‘gone to the hub’ and then out to the district nurse. I was home alone and no I couldn’t send anyone to fetch the forgotten prescription. Fortunately she agreed to phone the district nurse and email them the form…  I wasn’t totally convinced and had almost given up hope when the nurse turned up at 4.55pm.

Now my aim was to learn to do injections myself, it looked quite easy. In the stomach is not as bad as it sounds, subcutaneous, under the skin, just a matter of taking a fold of fat skin. I’m sure there are many people out there used to doing injections on themselves for various conditions, but this was my first time. The next day I did it under supervision, no problems, yes I would manage fine by myself tomorrow.

The nurse said the cap on the needle point is very stiff so you have to grip tightly and pull hard. Next morning I did exactly that… the plunger came out and liquid sprayed into the air. I had broken it. I took out another syringe and made sure I gripped the right part, success. Perhaps I would keep quiet and not tell anyone about the broken one…